sur Siegel Rare Neuroimmune Association
SRNA's 2024 Rare Neuroimmune Disorder Symposium Highlights Collaborative Learning
On November 12, 2024, the Siegel Rare Neuroimmune Association (SRNA) hosted the 2024 Rare Neuroimmune Disorder Symposium (RNDS) in Powell, Ohio, both in-person and virtually. The event united individuals affected by rare neuroimmune disorders, their families, caregivers, and medical professionals. The symposium fostered an exchange of insights, enriching understanding within the community.
Key highlights included sessions on diagnosing and treating rare neuroimmune disorders (RNDs), and discussions on the management of symptoms such as neuropathic pain and spasticity. Breakout sessions addressed care partners' well-being and provided opportunities for interaction with clinician-scientists.
The event also marked SRNA’s 30th anniversary, celebrating the organization's growth from a support initiative by Sandy Siegel and his late wife Pauline into a global entity advancing research and awareness in the field of rare neuroimmune disorders.
R. H.
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